But with encouragement from some family and friends, plus a little push here and there I am climbing up out of that hole yet again. I have come to accept that this is my life now. Not the one I would have chosen for myself for sure. I look at it this way. I am alive and there are still many things I can do. I try not to take to much time thinking about what I can no longer do. There are so many of you that have helped me when I was so down. So, I am playing it forward.
I have been lucky to have a husband that tries to understand this person I am now. I have friends that stand by me. And I have some family that does. I don't have the perfect life and things are not that easy for me. Like many of you I have friends and yes family that either don't understand or just don't want to. I have family that have just given up on me. Needless to say I am not welcome to be around them. But, I can live with that. I won't blame it all on my Graves' Disease, but it was a big part of it. Some think it is all in my head. Some think I just feel sorry for myself and then there are those that are just embarrased to be seen with me. Oh and then there are the ones that say I should do certain things and when I don't.....well .
I have talked to enough people who have this disease to realize I am not the only one this has happen to. I would like your feed back on this. Everyday somebody will ask me "Has this ever happen to you?" They go on to tell me something somebody said to them or done to them. The reason I am mentioning this now is to let you all know there are things and people we have no control over. That does not make us a bad person. It does not make us a selfish person. I want you to know you are not alone.
If we lose a friend or family member because of this Graves' Disease. Well, I guess we were just not that important to them. Not to worry. we are family here. WE can cry on each others shoulder. Those who come here want to understand this disease. Not everbody that comes here has TED or Graves' Disease. Those that live with us are going thru a hard time with this disease also. On this blog I plan on talking about things in our life that bother us, but not so much about the right level or what medication to take. I want to be more personal. There are enough sites to tell you about Thyroid Eye Disease and Graves' Disease.
People I talk to want to know more about what to expect from our everyday life. Everybody has stress in their life and crisis. Have Graves' Disease or Thyroid Eye Disease just makes it worse. I know...there have been people that have told me I just don't understand their problems. And they are right, I don't. I am not a doctor. I did not know how to be serious . It was Chrismas for me everyday. I worked with Santa. But that story is for another day. Although I will say, I miss working with that guy. I need some of that magic in my life again.
I will leave you today as I will everyday from now on...with a little quote.
"Every evening I turn my troubles over to God....He's going to be up all night anyway" By Donald Morgan