As for family. Well..... I had family that thought I was just feeling sorry for myself. My own mother milked her own health problems for all they were worth. She is a strong lady and still going strong at 87. But as far as I am concerned she does not believe I am even sick. If I try to tell her how I am feeling she will cut me short and tell me about her symptoms being a lot worse. That she is a lot sicker and she never complains like I do..Really???? Every symptom I have had , hers is always worse. If you can't talk to your own mother , who can you talk to? Yes, I know she loves me in her own way. She is not mean to me....but she is uncaring about my health. She would upset me so much and stress me out so much that I hardly ever see her any more. And guess what I am less stressed and she don't miss me. Sad, but true. I have not seen her in a few years and the most she has done is to tell someone to say hello for her to me. Not "Do you know how my daughter is?" Then there is family taht just made it plain I am not welcome. We use to have Christmas Eve at my moms every year. After she moved to a smaller apartment my half sister had Christmas at her house. A few years later I got sick and was no longer invited. When I would call to ask about bringing something I was told "We are not having the Christmas Eve party any more. " Later I find out there was one, but I was not invited and everybody was not to tell me. 2 of my adult children who live in the same city went. When I asked about it after one of their son's told me about going...their answer was they did not think I would want to go where I was not wanted. Well, they were right there. Having GD was just the excuse that was needed. I miss the family get togethers. But I do not miss the family members that go. My only brothers do not live near so they don't go anyway. The half sister and my mom has let everyone "Know" that I am playing sick and think I am to good for them. Sorry I am getting off track here. Clearly there are other factors going on besides my having GD and TED. Having the disease has just brought out the worse in my family and given an excuse to get me out of the picture. I am not glad I have GD and TED, but it has taught me a very valuable lessen. You will find out who really cares about you and who does not. Who was a fake friend or relative. Funny thing is an EX daughter -in-law has gone out of her way and brings my grandkids 200 miles with her new husband to visit me. She even brought them for Thanksgiving Dinner. Soooo people just so you know there are loving and kind people still around you. They come from the m ost unexpected places...
I was writing on FB today about losing friends and family because I have Graves' Disease and TED. It seems there are quit a few of us that have. I have had friends turn away from me for thinking I was covering up a "Bad" marriage. Some thought I was on drugs or drinking to much. I have mentioned that here before. But, every once in awhile the subject comes up again. And it is a painful subject for many of us. I had many friends when I was younger, but as my job and my volunteer work kept me on the road a lot I only had a few close friends. I had many acquaintances. I guess I did not mind losing them so much as my "Good" friends of many years. Because I had so few close friends I felt the shunning quickly. It seemed they were busy more often. They seemed to be embarrassed to be around me. you know always looking around to see who is watching. Giving me a knowing (?) look when asking me about my marriage, didn't I think maybe I was drinking a bit to much, or maybe I started taking drugs. Was that why I was going to the doctor so much? To get more drugs??? One so called friend even hit up my husband thinking we my break up soon and he may need company. I could not believe it when he told me. My husband confronted her in front of me. He knew she was my friend and did not want to hurt me ...but he was really pissed off that she would even think to do that to me...but worse to think he would do that to me. We had her and a few other friends over for dinner and he told her and everybody there. " My wife has Graves' Disease and is very sick. There is not a problem in my our marriage. I plan to stick by her side and help her beat this." He then pointedly looked at "Jody" and told her he had a sick wife but a healthy marriage and had no intention of leaving me or sleeping with anybody else. He then told her to get out of his house and never come back. Yes, he did embarrass her. But, he had one proud wife. With a husband like that I don't need friends. He has is been my best friend and my husband.
As for family. Well..... I had family that thought I was just feeling sorry for myself. My own mother milked her own health problems for all they were worth. She is a strong lady and still going strong at 87. But as far as I am concerned she does not believe I am even sick. If I try to tell her how I am feeling she will cut me short and tell me about her symptoms being a lot worse. That she is a lot sicker and she never complains like I do..Really???? Every symptom I have had , hers is always worse. If you can't talk to your own mother , who can you talk to? Yes, I know she loves me in her own way. She is not mean to me....but she is uncaring about my health. She would upset me so much and stress me out so much that I hardly ever see her any more. And guess what I am less stressed and she don't miss me. Sad, but true. I have not seen her in a few years and the most she has done is to tell someone to say hello for her to me. Not "Do you know how my daughter is?" Then there is family taht just made it plain I am not welcome. We use to have Christmas Eve at my moms every year. After she moved to a smaller apartment my half sister had Christmas at her house. A few years later I got sick and was no longer invited. When I would call to ask about bringing something I was told "We are not having the Christmas Eve party any more. " Later I find out there was one, but I was not invited and everybody was not to tell me. 2 of my adult children who live in the same city went. When I asked about it after one of their son's told me about going...their answer was they did not think I would want to go where I was not wanted. Well, they were right there. Having GD was just the excuse that was needed. I miss the family get togethers. But I do not miss the family members that go. My only brothers do not live near so they don't go anyway. The half sister and my mom has let everyone "Know" that I am playing sick and think I am to good for them. Sorry I am getting off track here. Clearly there are other factors going on besides my having GD and TED. Having the disease has just brought out the worse in my family and given an excuse to get me out of the picture. I am not glad I have GD and TED, but it has taught me a very valuable lessen. You will find out who really cares about you and who does not. Who was a fake friend or relative. Funny thing is an EX daughter -in-law has gone out of her way and brings my grandkids 200 miles with her new husband to visit me. She even brought them for Thanksgiving Dinner. Soooo people just so you know there are loving and kind people still around you. They come from the m ost unexpected places...
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All our lives something has scared us. From being scared of the dark to being alone. Somethings change somethings don't. you would think as we grow older and wiser we would be less scared of things. But, it is still a scary world no matter how old we get. Some may think we worry for nothing. What is going to happen is going to happen. That may be true. But right now I am going to talk about more personal things. Things like a scary eye surgery or neck surgery coming up. How can you not be scared? I am so scared of surgery I hate to even think I may need another. It not only scares me to think I may need one but that a loved one may need one.
I don't normally like to talk about surgery. There are people in my family that made a career out of talking about every surgery they ever had. They even go into detail. Now come on who what's to hear that. Be truthful. You don't want to hear it. I know I did not want to hear it. On the other hand you may get some useful information from what another went through with a surgery. If you are going to have the same kind...well you just may want to hear every detail. There is a good chance there may be something that will help you when you have to have the same kind of surgery. So. here I go again. You have a choice. As choice to learn from others and a choice not to listen and be scared. And there is the one that is scared to talk about the surgery they had. They do not want to remember. It may not have been that bad. But, you came out of it a different person or you look different. I know after my eye surgery I did not want to talk about it. I did not want to even be seen. When I was finely able to put makeup on again ..well I looked like a clown . Even though I put it on the same way as I did before. I did not understand that at all. Or may be it was just me. But, there I go again. I was afraid to go out in public, afraid to look in a mirror and afraid to take pictures. Then I realized something. I was talking to people on the internet and there were those getting ready to have the same eye surgery I had. And they were so afraid of the unknown. So afraid to have this eye surgery. Boy, do I remember how that felt. My heart went out to them. I wanted to easy their fear. So, I put my fear aside and collected photo' of myself. Before and after my Thyroid Eye Disease started. Pictures that showed the progress, they pain, the change. I cried the whole time I was making it. I don't know how many times I had to stop. To remember was not only painful but yes scary. Did I really want to let anybody see these pictures of me? No, I did not. When I was finely done making the DVD. It sat there for a bit. Two people knew I was making it and asked for a copy. One had already had Thyroid Eye Surgery and the other had not. PAt who has thyroid eyedisease.weebly put my Video and his on his website. An other copy I sent to Claire in Ireland. Since then it has been put up on youtube. Now the whole world could seen me at my worse. Now that is scary. But if it helps just ONE person . Just one....then two...then three. Was it worth me being scared and crying .........YES!!! Would I do it again....YES! Will I still cry when I watch it...........YES! Sorry done for today I am so excited. My store is open for business. Grand opening is March 10, my friends and family are getting a Pre-view to explore the store and buy now. Everything in the store is my original art work. You can only get it at my store. I have everything from stickers to neck ties. Key chains to mouse pads. Posters and T-shirts. I even have skate boards. I will be adding items weekly. So keep checking. Art work never seen before and more to come. If you have a special request let me know. I will draw something for you and name it for who ever you like.
Did I tell you I was excited???? I have been working on this for a long time and now finely my store is open for business. Visit my store and leave a comment. TED
By Elaine Martinez Before I met you, I was starry eye. Before I met you , I had a dream. Before I met you, I had a natural high. Since I met you, I want to scream! Before I met you, my eyes were nice. Before I met you, I use to shop. Before I met you, I did not know the price I would pay. Since I met you, My eyes now Pop. You made my eyes burn. You made my eyes so big. You made me have to learn, since I met you it is hard to live. Before I met you , I was not shunned. Before I met you, I enjoyed a breeze. Before I met you, I loved the sun. Since I met you , I freeze at the door. Now I have a patch and tear’s. Now I have many sun glass’s, TED. My mouth is dry, my hair is dry, my skin is dry and my eyes are dry. Some time I wake up just because my mouth is so dry. My skin is so dry I am constantly putting on a moisturizing lotion. Lubricating eye drops are always in my pocket or near by. And the hair....well it is so dry it jut breaks off and falls all over the place. What does this mean? I use to think it was my medication. Some even say it may cause one of the above. The thing is I have changed medication's over the years with Graves' Disease.I still have all these symptoms. Water just don't cut it with the dry mouth. Yes there are more medication and rinses you can use for dry mouth. Have you seen the labels. Some may cause something else. Many believe that if you have Graves' Disease ir can leave you open to other Autoimmune Disease. That may be true. But, another thing to really look at is. Medicines say taking them "May" cause other side effects. Some times is it scarier to take a medicine then not. I tend to look at both sides. Should I take this medicine and may get myself a cancer or have my kidney fail. What is worse to do. I am not telling you to take a medicine or not. I don't even usually bring up medicine. This is just something to make you think about the medicine you take. MAke you read all the fine print. You should be very aware of what is in your medicine at all times.
We Pop Way Too Many Pills, And The Pills Don’t Even Work www.fastcodesign.comThere are few things as private as the medicines we take. You can imagine asking a decent acquaintance who they voted for in 2008, who they’ve dated in the past year, and which family member they hate the most. "The seven ages of man are spills, drills, thrills, bills, ills, pills, and wills." |
ElaineI am the person that started the first coffee break. I Have had Graves' Disease for at least 10 years. I also have Thyroid Eye Disease. I give Thyroid Disease Support . My goal in life is to inform the public about Thyroid Disease. Archives
March 2018
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